Meet the contributors

Our Care Column contributors are a very special part of the Together in SMA community

Dany S. Mom

Dany is the mother of 2 children with spinal muscular atrophy (SMA): 2-year-old Landon and 5-year-old Ruby. She lives in Wisconsin with her children, husband Terence, and mother Margie.

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Edmund L. Dad

Edmund lives in Illinois with his wife, Kim. Their daughter, Angie, was diagnosed with SMA at 15 months.

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Angie L. Student

Angie is an 18-year-old student living with Type II SMA. She is from Illinois and is studying English at a university in California.

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Erika R. Mom

Erika lives in California with her husband, Steven, and 2 children, Riley and Logan. Logan was diagnosed with SMA at 20 months.

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Kate V. Mom

Kate lives in Wisconsin with her fiancé, David; her daughter, Leah; and their cat, Hunter. Leah, 11, was diagnosed with SMA at 14 months.

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Ashley B. Mom

Ashley lives on a farm in Wisconsin with her husband Darren and 4 daughters: twin 5-year-old daughters Natalie and Jaena, 3-year-old Collins, and 1-year-old Heidi. Collins was diagnosed with Type II SMA at 8 months.

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Keyrin D. Student

Keyrin is a 17-year-old high school student from Los Angeles, California, who lives with Type 2 SMA. Her aspirations include going to the University of California, Berkeley and becoming a scientific journalist.

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Liz B. Mom

Liz is the mom of a Type I/II SMA angel. She is a project management and marketing consultant who lives in Southern California with her husband, Jim, and their 2 unaffected children (ages 10 and 18) and 3 dogs.

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Lisa B. Adult with SMA

Lisa is 55 years old and has Type 3 SMA. She was born and raised in Brooklyn, NY, where she worked as a speech and language therapist. She is the author of 4 educational children’s books.

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The people featured on this website are part of Together in SMA, which is sponsored by Biogen.
Biogen compensates these contributors for their time and the content they provide.