Dany is the mother of 2 children with spinal muscular atrophy (SMA): 2-year-old Landon and 5-year-old Ruby. She lives in Wisconsin with her children, husband Terence, and mother Margie.
Edmund lives in Illinois with his wife, Kim. Their daughter, Angie, was diagnosed with SMA at 15 months.
Angie is an 18-year-old student living with Type II SMA. She is from Illinois and is studying English at a university in California.
Erika lives in California with her husband, Steven, and 2 children, Riley and Logan. Logan was diagnosed with SMA at 20 months.
Kate lives in Wisconsin with her fiancé, David; her daughter, Leah; and their cat, Hunter. Leah, 11, was diagnosed with SMA at 14 months.
Ashley lives on a farm in Wisconsin with her husband Darren and 4 daughters: twin 5-year-old daughters Natalie and Jaena, 3-year-old Collins, and 1-year-old Heidi. Collins was diagnosed with Type II SMA at 8 months.
Keyrin is a 17-year-old high school student from Los Angeles, California, who lives with Type 2 SMA. Her aspirations include going to the University of California, Berkeley and becoming a scientific journalist.
Liz is the mom of a Type I/II SMA angel. She is a project management and marketing consultant who lives in Southern California with her husband, Jim, and their 2 unaffected children (ages 10 and 18) and 3 dogs.
Lisa is 55 years old and has Type 3 SMA. She was born and raised in Brooklyn, NY, where she worked as a speech and language therapist. She is the author of 4 educational children’s books.
Real-world insights from the SMA community
The people featured on this website are part of Together in SMA, which is sponsored by Biogen.
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